Exhausted

Yesterday Destiny had an appointment with her Pediatrician/Endocrinologist.  I am very lucky that he does both.  Her A1C was a 7.7  I wasn't very happy with it but he tried to reassure me and tell me what a rock star I was.  I didn't feel like a rock star.  I want her A1C to be around 7.0  Progress, not perfection I guess.  We made some pretty drastic changes in her insulin.  I am not sure what other children's numbers are but she seems to get a lot of insulin for such a little girl.

For those of you that speak diabetes here are her numbers:

From midnight until 9 am her basal is 1.15 per hour
From 9 am until midnight her basal is 1.3 per hour

Her insulin to carb ratio is 1:8 unless it is after 9 at night which is then 1:10

How does this compare to others her age?  No idea.  It seems like a lot to me.

Because we jumped the insulin so much I had to do 2 hour checks just to make sure she didn't go low.  So every 2 hours last night my alarm would go off and I would drag my tired butt out of bed and check her and then reset my alarm for 2 more hours.  I am so exhausted I can barely think.  The good news is that all night she did great and her numbers were wonderful.  This morning her blood sugar was 79 and I will take that as a success!!!

I also asked him to refer us to a developmental pediatrician and I didn't think he would do it but he did.  I am so excited.  Now maybe I can get her "Officially" diagnosed with aspergers.  It is obvious to everyone but without that diagnoses from the doctor I can't get her services.  Strange but true.  Last year when I talked to him about some problems we were having with Destiny (still wetting and pooping her pants, falling behind in school, no social skills, etc.) he told me that she was just a late bloomer and that I shouldn't be worried.  I am glad he finally changed his mind.  After all, she is almost 9.

I am crocheting Destiny a blanket.  When picking out the yarn yesterday with my older daughter, Brittni, we had a realization.  I couldn't just buy just any yarn.  Destiny has a lot of sensory issues and therefore can't have just any material on her skin.  And she has what I call OCD so you have to make sure it is the right color and the right texture.  We must have done well because Destiny was very excited when we got home with it.  I knew I couldn't take her with me to pick it out because she would have become very overwhelmed in the aisle with so many choices and it would have become a huge fight.  I let her pick out the design of the blanket and then I did a different one.  I hope she doesn't notice.  Funny how she is so OCD about some things and other things she doesn't even notice.